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ART Receives Award from Prime Minister

The Prime Minister has today, 21 May, recognised ART for coordinating volunteer visits to hospitals.


Liz is the founder of the ‘Anne Robson Trust’ which coordinates volunteer visits to hospitals to offer company and comfort to patients at the end of their lives. Following the death of her mother Anne Robson in 2010, Liz worked with the local NHS Trust on improving the hospital experience for terminally ill patients. Starting initially as a small group of volunteers, Liz soon realised that, for many patients, a volunteer was their only visitor. Liz set up the ‘Anne Robson Trust’ in 2017 and has since trained and led volunteers who have offered more than 700 hours at patients’ bedsides at the Princess Alexandra Hospital. The volunteers have carried out 1,300 visits to 450 individual patients across the hospital. This year the project is expanding to other hospitals with the creation of volunteer coordinator roles.

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Interview with a Butterfly Volunteer

Watch this facinating interview of Vanessa, one of our amazing Butterfly Volunteers working at The Princess Alexandera Hospital in Harlow.

For more information about volunteering opportunities, make sure you have subscribed to our newsletter here. 

Already subscribed and have a few questions? Check out our Butterfly Volunteer FAQs here.


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Dying Matters Week 2019

Dying Matters Week 2019 is looking like it’s going to be a busy one for The Anne Robson Trust!


We are very excited to be fully booked during Dying Matters week 13th – 17th May 2019, delivering The “D” Word Workshops every day during the campaign to raise awareness and start the conversations about death and dying.

We will be discussing this years theme – Are We Ready? during the session on paperwork and why its so important if you are approaching the end of your life.

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Now Recruiting: Butterfly Volunteer Co-ordinator

An opportunity has arisen for a volunteer coordinator at East Suffolk and North Essex hospitals (ESNEFT).

The post holder will assist in the recruitment and launch of Butterfly Volunteers at ESNEFT which is a new service of volunteers supporting dying patients and their family/friends in the last days of life.  We are looking for an excellent communicator who has experience of working in the voluntary sector and who has had either professional or personal experience of supporting dying patients.  The post holder will work closely with the Anne Robson Trust, who will assist with recruitment, training, management and launch of this exciting project, as well as the hospital palliative care teams.

Click here for the full job role and information on how to apply.

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Spotlight On Roger Mawle

My name is Roger Mawle and I am very proud to have recently been appointed as a Trustee of the Anne Robson Trust. I work in the business world so, together with the other trustees, I have mainly been helping us think through how we can set the organisation up to grow sustainably so that the wonderful Butterfly Volunteers can have a positive impact on as many lives as possible across the country.  

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ehospice: An ART Feature

Here at the Anne Robson Trust, we are very proud to be featured on ehospice.com, a globally run news and information resource committed to bringing the latest news, commentary and analysis from the world of hospice, palliative and end of life care.

“There are too many people dying in hospitals without any support at all and without any family” ART Director Liz Pryor explains. “I’d like to see as many hospitals as possible setting up and running teams of volunteers to support their palliative care team, and patients and their families.”

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Why I Love My Job: Liz Pryor on John’s Campaign

Liz Pryor, Director of The Anne Robson Trust, shares the inspiring story of how, in the wake of an experience that shouldn’t have happened, she has worked for change to stop it being something so often (and so painfully) repeated:

“I’m very touched that Julia has asked me to write a blog post for the John’s Campaign website. Having been a supporter of John’s Campaign since the outset – I am humbled by the sheer scale of Nicci & Julia’s achievements.

Our story is a familiar one, unfortunately, but one with a light at the end of the tunnel, I think.”

You can read the whole article on John’s Campaign by clicking here.

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ART Butterfly Volunteers Won £618 at the February Harlow Soup!

We were very pleased to be invited to join in on a fundraising evening, local to The Princess Alexandra Hospital, called Harlow Soup, on Thursday 28th February.

Jo did a brilliant job with her four minute pitch, and we were delighted to win the money collected on the door – which totalled £618!

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2018…. We made it through our first year!

Amazingly, it has just been the ninth anniversary of the death of my mother, Anne Robson. I can’t quite believe that it’s been so long… but then I think about all that’s happened in those nine years, and realise that we’ve come quite a long way.


Since setting up the team of Butterfly Volunteers in Hertfordshire in May 2016, we seem to have been on rather a fast paced roller coaster!

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ART Hits the National Press

BEL MOONEY writes a heartfelt but uplifting despatch from the hospital end of line


Bel Mooney is an journalist and broadcaster. She currently writes a column for the Daily Mail and met with the ART Team earlier in the month at the Princess Alexandra Hospital in Harlow, home to one of our first ART Butterfly Volunteer projects.

Click here to read the article written for the Daily Mail.

“We’re so proud to feature in the national press and look forward to continuing our work across the UK to make sure no one dies alone.” – Liz Pryor, Director of the Anne Robson Trust

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