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Interview with a Butterfly Volunteer

Watch this facinating interview of Vanessa, one of our amazing Butterfly Volunteers working at The Princess Alexandera Hospital in Harlow.

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ehospice: An ART Feature

Here at the Anne Robson Trust, we are very proud to be featured on ehospice.com, a globally run news and information resource committed to bringing the latest news, commentary and analysis from the world of hospice, palliative and end of life care.

“There are too many people dying in hospitals without any support at all and without any family” ART Director Liz Pryor explains. “I’d like to see as many hospitals as possible setting up and running teams of volunteers to support their palliative care team, and patients and their families.”

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2018…. We made it through our first year!

Amazingly, it has just been the ninth anniversary of the death of my mother, Anne Robson. I can’t quite believe that it’s been so long… but then I think about all that’s happened in those nine years, and realise that we’ve come quite a long way.

 

Since setting up the team of Butterfly Volunteers in Hertfordshire in May 2016, we seem to have been on rather a fast paced roller coaster!

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ART Hits the National Press

BEL MOONEY writes a heartfelt but uplifting despatch from the hospital end of line

 

Bel Mooney is an journalist and broadcaster. She currently writes a column for the Daily Mail and met with the ART Team earlier in the month at the Princess Alexandra Hospital in Harlow, home to one of our first ART Butterfly Volunteer projects.

Click here to read the article written for the Daily Mail.

“We’re so proud to feature in the national press and look forward to continuing our work across the UK to make sure no one dies alone.” – Liz Pryor, Director of the Anne Robson Trust

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Fab NHS Stuff WINNERS

A while ago our work was selected as the ‘pick of the week’ by an organisation called Fab NHS Stuff, which is run by Roy Lilley and Terri Porrett. They run an annual awards event, which took place on 15th November 2018, where all 52 projects (one for every week of the year) are in the running for their Piccalilley Award of the year.

We won!

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Job Vacancy: Volunteer Coordinator for ART Butterfly Volunteers- POST NOW FILLED

We are excited to announce the first in a round of recruitment for ART Butterfly Volunteer Coordinators.

Our teams of Butterfly Volunteers visit patients in hospital who are in the last weeks, days and sometimes hours of their life. They provide companionship and a hand to hold. They support families as they face the imminent death of a loved one.

First to advertise the opportunity is Norfolk & Norwich University Hospitals NHS Foundation Trust – with our Patron, Prof Nancy Fontaine at the helm as Chief Nurse. Here is a link to the recruitment page. NB This post is now filled.

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Diary of an ART Butterfly Volunteer: Entry 4

Reflecting back during my time as a Butterfly Volunteer at PAH, I remember being really apprehensive the first time I knocked on a patient’s room door when there were visitors with them.

Not only do I know how difficult and heart-breaking it is to be at the bedside of a loved one when they are dying, it was important to me that they didn’t feel like I was intruding.

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A Squeezed Hand and a Smile

Our ART Butterfly Volunteers provide compassionate listening, comfort and companionship for patients in the last few days and hours of life, many of whom have few or no visitors, and would otherwise be alone.

Some patients give very little or sometimes no response to our volunteers, so are we making a difference?

 

“Sometimes I wonder when I’m with a patient who doesn’t seem to be responding if I’m helping, or if they would really like me to be there if they could say.

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Diary of an ART Butterfly Volunteer: Entry 3

We have spent 7 months at the Princess Alexandra Hospital in Harlow where our ART Butterfly Volunteers have provided 738 individual visits to 283 patients who are nearing the end of their life. One of the team, Tanya Cotter, has offered to write a short account of each visit. Here are her thoughts after her third shift:

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